The Dyspraxia Foundation’s closure is a significant blow to the community of adults with dyspraxia, a neurological condition affecting physical coordination. The Foundation has been a cornerstone of support, advocacy, and information for those affected by the condition, also known as Developmental Coordination Disorder (DCD). Its closure leaves a gap in services and resources that were once readily available.

Impact on Information and Awareness

One of the most immediate impacts of the Dyspraxia Foundation’s closure is losing a central hub of information about the condition. For adults with dyspraxia, accessing reliable and comprehensive resources about their condition can be challenging. The Foundation played a crucial role in disseminating information about dyspraxia to adults, healthcare professionals, and the general public, helping to increase awareness and understanding.

With its closure, adults with dyspraxia may find it harder to find information that can help them manage their condition and explain it to others, potentially leading to greater misunderstanding and stigma.

Loss of Advocacy

The Dyspraxia Foundation was also a voice for adults with dyspraxia, advocating for their needs and rights. It worked to promote better diagnostic services, accommodations in the workplace, and recognition of the challenges faced by adults with the condition. The loss of such an influential advocate means that adults with dyspraxia may struggle more to have their needs recognized and met by policymakers, employers, and service providers.

Reduction in Support Networks

Support networks are vital for adults with dyspraxia, offering a sense of community and shared understanding. The Dyspraxia Foundation often facilitated support groups, online forums, and events that allowed individuals to connect and share experiences. The closure of the Foundation could lead to the disbandment of these support networks, leaving many adults with dyspraxia feeling isolated.

Challenges in Accessing Services

The Foundation provided information and support and guided individuals in accessing services, whether it be occupational therapy, counseling, or other forms of assistance. With its closure, adults with dyspraxia may encounter more difficulties navigating the healthcare system and finding the help they need.

What’s Next for Adult Dyspraxics?

The closure of the Dyspraxia Foundation necessitates a response from the community of adults with dyspraxia, healthcare providers, and allied organizations. Here are some steps that could be taken to mitigate the impact:

  • Community-Led Initiatives: Adults with dyspraxia and their allies might form new organizations or support groups, either locally or online, to replace the community lost by the Foundation’s closure.

  • Partnerships: Partnering with other neurodiversity or disability organizations can help fill the void in advocacy and support. These organizations may be able to integrate dyspraxia into their existing frameworks and services.

  • Crowdfunding and Volunteering: Crowdfunding campaigns could be initiated to fund new resources or to support existing services that aid adults with dyspraxia. Volunteers could also step up to offer their time and expertise.

  • Public and Private Sector Support: Public health services and private sector organizations could recognize the gap left by the Foundation and increase their support for adults with dyspraxia.

  • Increased Research and Education: Universities, researchers, and medical professionals could emphasize understanding dyspraxia in adults and developing resources to support them.

The closure of the Dyspraxia Foundation is undoubtedly a setback for the adult dyspraxia community. However, it also presents an opportunity for society to recognize the importance of such organizations and to take collective action to support individuals with dyspraxia. By coming together, the loss of the Foundation can be transformed into a catalyst for deeper understanding and better support for adults with dyspraxia.

Comments (5)

  1. Oluseyi

    Reply

    Even though you outlined the impact of the Dyspraxia Foundation’s closure, I like that your post is not focused on ‘crying over spilled milk’, (since the foundation has already closed down) but on new initiatives to take care of the needs of adults with Dyspraxia to cover the gaps created. As I read this post, I wondered if some of these insightful suggestions and initiatives you outlined like crowdfunding, private-sector support/partnerships or community-based support could have kept this foundation going. One can only sincerely hope that these ideas are implemented. Out of curiosity, I would have liked to know why such an important foundation was shut down.

    • admin

      Reply

      Hi Olusei. Thank you for your comment. 

      The Dyspraxia Foundation closed down due to lack of funding. Dyspraxia is one of the lesser-known neurodiversity traits and as such many funders often overlook it in favour of more-known traits like ADHD. 

  2. kiersti

    Reply

    I just finished reading the article and it’s truly disheartening news. The Foundation has been a beacon of support and resources for so many individuals and families dealing with dyspraxia. It’s hard to imagine the gap this closure will leave in the community.

    I found it particularly concerning how the article highlighted the potential impact on those who relied on the Foundation’s services and advocacy. This raises an important question: What steps can we take to ensure that the support and awareness for dyspraxia continue despite the Foundation’s closure? It’s crucial that we find ways to fill this void and continue the vital work they started.

  3. Gemma

    Reply

    helllo there,

    Having a family member with dyspraxia adds an extra layer of concern and worry. Every day, i learn new ways to provide assistance and understanding. While the closure of the Foundation feels like a step back ((, let’s stay resilient. Together, we’ll offer a strong support system for everyone grappling with dyspraxia.  thank you for an article. but I  wonder why the foundation is closed.?

  4. Troy Blanchard

    Reply

    Hi there

    Very informative material

    indeed, the closure of the Dyspraxia Foundation after more than 30 years marks a significant loss for the dyspraxic community, which has long relied on the foundation for support, resources, and advocacy. This event highlights the broader issue of funding and sustainability challenges faced by many non-profit organizations, especially those dedicated to specific medical conditions. 

    The foundation’s efforts have been crucial in raising awareness and understanding of dyspraxia, helping countless individuals navigate their daily lives and educational paths. Without this support, there may be a gap in services and advocacy for those affected. 

    Thanks again

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